Live Now is a movement to start living on your terms, with hope, optimism and strength. Kidney disease doesn't define your life - you do. It's time to get up, get out and live for today.
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Get the kidney disease support you need to live your life

Dealing with the pressures and stresses of dialysis can be challenging for both patients and their family and friends, and there may come a time when you need help to keep going. Thankfully, support is always available regardless of whether you live alone or have someone there to help, even if you choose to do your dialysis at home. The help you need may be simple, like getting help running errands or just having a person to talk to about your treatment. But even when it gets more complicated, like paying for your care, learning how to prepare kidney-friendly meals or what to do next, there is support for you from reliable people and places where you can find the information you need about kidney disease.

Use your social network

Once you’ve been diagnosed with kidney disease, it’s often times easy to feel lost and to shut yourself off from the people around you. But that’s when it’s more important than ever to turn to your family, friends, community, church, co-workers, other patients, care team, organizations and your whole social network for support. Just knowing that people care is a huge boost that not only helps you get through the day, but also gives you the support and hope you need to keep your spirits up so you can continue to live your life to the fullest.

People want to help

It’s natural to want to help out someone in need. People want to help. They know that living with kidney disease is hard. But often, they don’t know what they can do. They’re just waiting for you to tell them how they can help. Consider your needs and then ask for support. It’s easy to assume you will be putting people out when asking them for something, but it’s important to remember that more than likely, they want to help you. You have to take the first step and tell them what you need; whether that’s something as simple as a person to talk to or something that may be harder to ask for, like a shoulder to lean on for financial support.

Families and friends need help, too

When someone has been diagnosed with kidney disease, their family's and friends' lives are also affected. Those close to a patient on dialysis may experience changes in their lifestyles or roles. Fortunately, there are places and resources care givers can turn to for help and support

Organizations you can turn to for kidney disease support

American Association of Kidney Patients (AAKP)

The AAKP is a national non-profit organization founded by kidney patients for kidney patients. It's a great place to learn more about kidney disease, find important information and publications, and get support from people who understand exactly what you're going through.
www.aakp.org
1-800-749-2257

American Kidney Fund (AKF)

The American Kidney Fund helps patients in need find financial support, offers health education to raise kidney awareness, provides information about free kidney health screenings and assists in kidney disease prevention efforts.
www.kidneyfund.org
1-800-638-8299

National Kidney Foundation (NKF)

The NKF has an extensive and user-friendly website featuring valuable information about every aspect of kidney disease. You'll find educational tools, message boards, diet and nutrition information, an "A-to-Z" health guide, an "Ask the Doctor" question and answer section, as well as links and support resources to help you get the most from your life.
www.kidney.org
1-800-622-9010

Renal Support Network (RSN)

The Renal Support Network is a patient-focused, patient-run organization. Their website provides a wealth of useful information and support for people affected by Chronic Kidney Disease (CKD) and on dialysis.   
www.renalnetwork.org
Patient-to-patient help and support is only a phone call away on the Patient HOPEline: 1-800-579-1970 from 10am to 8pm PST

Home Dialyzors United

homedialyzorsunited.org



When I was told that I had kidney failure I was initially very angry, even at the doctor. He had bad news I didn’t want to hear and I was really angry about that. I went home after my doctor visit and I cried about it, and then I called him back and said ‘Okay, what’s the name of that surgeon’ because I knew it was something that I needed to take care of as soon as possible.  

Renae, Grandmother 
Jail Sergeant
Peritoneal Dialysis Patient
Brought to You By Baxter Baxter